I was diagnosed with Type One Diabetes, as a teenager, in November 1998. A sociable, demanding, even high achieving girl, diabetes suited the woman I thought I could be. But it is a lonely disease, it demands more than I could achieve. For the first 13 years the diabetes and my life felt together but apart.
Diabetes is swan like: on the surface I am a historian, gliding through London, with dance, gardening, theatre, writing gracing my feathers. Underneath, however, there is a paddling frenzy that is drowning in the merky waters of insulin-ratios, carb-counting, cannula changes, hypos, hypers, hormonal fluctuations and new medicines.
Until I was 28 I worked hard to get only ok A1Cs. Never below 6.9. Never above 8.2. I’d read interviews with people with diabetes or briefly encountered other people with Type One in waiting-rooms, the daily-struggle or the intense elation that hovers in the mind of a person with diabetes was edited out. It never felt personal. I’d go online, but information felt sterile and forums felt stilted. In 2012 I started using twitter to talk to other people with Type One. For the first time in thirteen years I felt that my diabetes was part of my life, not the other way round. I wasn’t having to use a diabetic-specific app. I wasn’t having to hide it to talk about the things I loved. I could just talk about it as part of my life and the diabetic/diabetes online community #DOC understood.
So this blog is a diary of just that, it attempts to talk about my diabetes as part of me, not apart from me.
You are full of insight and this gives me insight into helping my patients(I am a practice nurse).Depression is such a pain in the butt ….stay strong ! Many thanks for being so open.
Thank you Sue! My ambition with this blog was to do just that, so it really means a lot. Awesome to know HCPs are increasingly searching for patient insight through social media and blogging x